GIST - A Rare Orphan Cancer

Gastrointestinal Stromal Tumor or GIST is a rare, orphan cancer which starts in a type of tissue called the stromal or the body’s connective tissue (fat, muscle, blood vessels, deep skin tissues, nerves, bones or cartilage). GIST is a silent cancer often spreading before the patient has symptoms. Each year, approximately 5,000 adults in the United States alone are diagnosed with GIST Cancer. According to the American Cancer Society, many doctors misdiagnose GIST as another type of GI cancer. The lifesaving treatment for GIST is delayed and the GIST Cancer destroys lives. The overall five year survival rate of people diagnosed with a malignant tumor has been estimated to be 76%.

Memorial Sloan Kettering Cancer Center Honors The GCRF On Its Donor Wall in New York City

In 2012, The GIST Cancer Research Fund and Robert and Tania Stutman were honored by Memorial Sloan Kettering Cancer Center for GCRF’s generous donations given for GIST Cancer Research. Their names were etched into MSKCC’s donor wall for posterity. For almost twenty years, The GIST Cancer Research Fund has been tirelessly fighting to raise funds to eradicate this deadly disease with no staff, corporate headquarters or overhead. Since 2002, the foundation has raised more than $10 million and MSK has been the beneficiary of $1.6 million. Events including walkathons, 1,000-mile Cycling for a Cure bike rides, golf outings and galas now span the nation. (Other GCRF beneficiaries include Fox Chase, Brigham and Women’s Hospital in Boston, Oregon Health Sciences University Cancer Institute, and MD Anderson Cancer Center in Houston.) At MSK, the GCRF supports the work of Dr. Antonescu and Dr. Ping Chi.

Robert and Tania Stutman join the generous philantropists including Susan G. Komen, who donate to MSKCC. The GCRF has raised $10 million dollars for GIST Cancer Research and has given 100% of these fund to finding a cure for GIST Cancer. As Tania Stutman said, ‘I’m not only battling for my life, I’m fighting for the lives of others.’”

Tania’s Story and the Formation of the GIST Cancer Research Fund

“I started with just a little website,” Tania says. “I went on local radio. I went to our local paper and told them my story.” In 2001, she held her first walkathon and raised $23,000. In 2018, the foundation has raised more than $10 million dollars and every penny has gone to GIST Cancer Research.

Fox Chase Cancer Center Applauds GCRF For Its Generous Support

Margaret von Mehren, MD, Chief, Division of Sarcoma Medical Oncology, Lori Rink, Ph.D., Assistant Professor and Martin Belinsky, Ph.D., Staff Scientist discuss the strides in finding a cure for GIST Cancer which were made possible by the GIST Cancer Research Fund.

Attention GIST Patients: Web-Based Survey of Cognitive Dysfunction & Other Patient-Reported Outcomes Now Available

A study is being conducted by Dr. Anette Duensing in collaboration with Drs. Dana Bovbjerg and Robert Ferguson (Biobehavioral Oncology Program, UPMC Hillman Cancer Center, University of Pittsburgh School of Medicine) and Dr. Beth Snitz (Department of Neurology, University of Pittsburgh School of Medicine). We are asking GIST patients who are members of your online community and support groups to complete an online survey to help us to identify possible memory complaints in GIST patients on long-term TKI therapy. Please note: The survey can only be taken once from any given IP address. Take survey now. Click on button below.

Save Lives And Show Your Feelings About GIST Cancer

GCRF has GIST Cancer Bracelets, Ribbons and T-Shirts available for sale. By wearing and displaying them, you are spreading a message and awareness to find a cure for this rare cancer.

Donate today to spread awareness and find a cure! To Purchase, Click On The Button Below.