Date Set For NY Walk For A CureThe Biggest GIST CANCER Event in the World, GCRF’s New York Walk For A Cure, hosted by Tania and Robert Stutman, will be held on Sunday, September 30, 2018 at Rockland Lake State Park, Congers, New York. Registration begins at 9:30 AM and the Walk begins at 10:30 AM. Special discount rate for rooms at The Hilton Garden Inn in Nanuet, NY. Register early by downloading pdf and bring with you the day of the Walk.READ MORE
GCRF REACHES $10 MILLION DOLLARS IN DONATIONS. 100% OF THE FUNDS GO TO GIST CANCER RESEARCH!Since its inception in 2001, the GIST Cancer Research Fund has been relentless in its efforts to find a cure for GIST Cancer. This year, we are proud to announce a major milestone in donations reaching $10 million dollars. The most important part of the achievement is that 100% of all the funds raised went to GIST Cancer Research. In 17 years, our GIST Cancer Doctors and researchers have made major strides in finding a cure. Perhaps, in a few more years, a cure will be found for this deadly cancer.READ MORE
Announcing • Launch of Web-Based GIST Patient Survey of Cognitive Dysfunction & Other Patient-Reported OutcomesOver the last months, a new research initiative being conducted by Dr. Anette Duensing, has begun after hearing patients with GIST complain about negative symptom experiences during long-term treatment, particularly with respect to cognitive function (similar to “Chemo brain”). We are asking all GIST patients to complete an online survey to help us to identify possible memory complaints in GIST patients on long-term TKI therapy.READ MORE
DR. CRISTINA ANTONESCU & DR. PING CHI, MSKCC PRESENT VIDEO ON LATEST GIST CANCER RESEARCHWatch the presentation by Dr. Cristina R. Antonescu and Dr. Ping Chi on their ongoing research for GIST Cancer at their Memorial Sloan Kettering Cancer Center lab.READ MORE
TEAM TURANO 2018 ANNUAL GCRF FUNDRAISERThe Turano family has set a date for its Annual GIST Cancer Research Fundraiser. This year it is bigger and better than ever. The date is September 14, 2018 at The Hanover Manor in Hanover, NJ. A tricky tray/50/50 Dinner will be held. Tickets are $65 and include dinner and dessert, soft drinks, tricky tray ticket packet. There will also be a cash bar. Doors open at 7:00 pm. Go to www.teamturano.org for more information.READ MORE
GCRF California Ready For Annual WalkThe San Jose Gist Cancer Walk For A Cure, hosted by Liz Chew, will be held on Sunday, October 21, 2018. The annual Walk For A Cure will be held at Almaden Lake Park in San Jose, California from 10:30 AM to 2:30 PM (registration starts at 9:30 AM). More details will be posted on www.gistwalksanjose.org in the next few months.
Day For Jay Benefit Raises $13,000 For GCRFThe family of Jay Laegreid celebrated her life by holding an event in her honor on July 20, 2018 in Seattle, WA. The event was a big success and thirteen thousand dollars was raised for GIST Cancer Research. GCRF extends it deepest appreciation to the Laegreid family and all who contributed to the event and the obliteration of GIST Cancer.READ MORE
Long-Term Survival Rates For GIST PatientsThe SWOG study shows strong long-term survival rates for patients with GIST. "This is a really exciting finding," said Dr. Michael Heinrich, a SWOG investigator and a professor of medicine and cell and developmental biology at Oregon Health & Science University, where SWOG is based.READ MORE
Supporting The GIST Cancer Team of Doctors, Researchers & NursesGCRF is committed to supporting the GIST Cancer Team of Doctors, Researchers and Nurses who have dedicated their lives to the treatment and cure of this deadly cancer.READ MORE
GIST - A Rare Orphan Cancer
Gastrointestinal Stromal Tumor or GIST is a rare, orphan cancer which starts in a type of tissue called the stromal or the body’s connective tissue (fat, muscle, blood vessels, deep skin tissues, nerves, bones or cartilage). GIST is a silent cancer often spreading before the patient has symptoms. Each year, approximately 5,000 adults in the United States alone are diagnosed with GIST Cancer. According to the American Cancer Society, many doctors misdiagnose GIST as another type of GI cancer. The lifesaving treatment for GIST is delayed and the GIST Cancer destroys lives. The overall five year survival rate of people diagnosed with a malignant tumor has been estimated to be 76%.
Memorial Sloan Kettering Cancer Center Honors The GCRF On Its Donor Wall in New York City
In 2012, The GIST Cancer Research Fund and Robert and Tania Stutman were honored by Memorial Sloan Kettering Cancer Center for GCRF’s generous donations given for GIST Cancer Research. Their names were etched into MSKCC’s donor wall for posterity. For almost twenty years, The GIST Cancer Research Fund has been tirelessly fighting to raise funds to eradicate this deadly disease with no staff, corporate headquarters or overhead. Since 2002, the foundation has raised more than $10 million and MSK has been the beneficiary of $1.6 million. Events including walkathons, 1,000-mile Cycling for a Cure bike rides, golf outings and galas now span the nation. (Other GCRF beneficiaries include Fox Chase, Brigham and Women’s Hospital in Boston, Oregon Health Sciences University Cancer Institute, and MD Anderson Cancer Center in Houston.) At MSK, the GCRF supports the work of Dr. Antonescu and Dr. Ping Chi.
Robert and Tania Stutman join the generous philantropists including Susan G. Komen, who donate to MSKCC. The GCRF has raised $10 million dollars for GIST Cancer Research and has given 100% of these fund to finding a cure for GIST Cancer. As Tania Stutman said, ‘I’m not only battling for my life, I’m fighting for the lives of others.’”
Tania’s Story and the Formation of the GIST Cancer Research Fund
“I started with just a little website,” Tania says. “I went on local radio. I went to our local paper and told them my story.” In 2001, she held her first walkathon and raised $23,000. In 2018, the foundation has raised more than $10 million dollars and every penny has gone to GIST Cancer Research.
Fox Chase Cancer Center Applauds GCRF For Its Generous Support
Margaret von Mehren, MD, Chief, Division of Sarcoma Medical Oncology, Lori Rink, Ph.D., Assistant Professor and Martin Belinsky, Ph.D., Staff Scientist discuss the strides in finding a cure for GIST Cancer which were made possible by the GIST Cancer Research Fund.
Attention GIST Patients: Web-Based Survey of Cognitive Dysfunction & Other Patient-Reported Outcomes Now Available
A study is being conducted by Dr. Anette Duensing in collaboration with Drs. Dana Bovbjerg and Robert Ferguson (Biobehavioral Oncology Program, UPMC Hillman Cancer Center, University of Pittsburgh School of Medicine) and Dr. Beth Snitz (Department of Neurology, University of Pittsburgh School of Medicine). We are asking GIST patients who are members of your online community and support groups to complete an online survey to help us to identify possible memory complaints in GIST patients on long-term TKI therapy. Please note: The survey can only be taken once from any given IP address. Take survey now. Click on button below.
Save Lives And Show Your Feelings About GIST Cancer
GCRF has GIST Cancer Bracelets, Ribbons and T-Shirts available for sale. By wearing and displaying them, you are spreading a message and awareness to find a cure for this rare cancer.
Donate today to spread awareness and find a cure! To Purchase, Click On The Button Below.