Date Set For NY Walk For A CureThe Biggest GIST CANCER Event in the World, GCRF’s New York Walk For A Cure, hosted by Tania and Robert Stutman, will be held on Sunday, September 30, 2018 at Rockland Lake State Park, Congers, New York. Registration begins at 9:30 AM and the Walk begins at 10:30 AM. All are invited to attended. More details to follow.READ MORE
GIST CANCER RESEARCH FUND REACHES A $10 MILLION DOLLAR MILESTONE IN DONATIONSSince its inception in 2001, the GIST Cancer Research Fund has been relentless in its efforts to find a cure for GIST Cancer. This year, we are proud to announce a major milestone in donations that have reached $10 million dollars. The most important part of the achievement is that every dollar has gone to GIST Cancer Research. In 17 years, our GIST Cancer Doctors and researchers have made major strides in finding a cure. Perhaps, in a few more years, a cure will be found for this deadly cancer.READ MORE
Announcing • Launch of Web-Based GIST Patient Survey of Cognitive Dysfunction & Other Patient-Reported OutcomesOver the last months, a new research initiative being conducted by Dr. Anette Duensing, has begun after hearing patients with GIST complain about negative symptom experiences during long-term treatment, particularly with respect to cognitive function (similar to “Chemo brain”). We are asking all GIST patients to complete an online survey to help us to identify possible memory complaints in GIST patients on long-term TKI therapy.READ MORE
GCRF California Ready For Annual WalkThe San Jose Gist Cancer Walk For A Cure, hosted by Liz Chew, will be held on Sunday, October 21, 2018. The annual Walk For A Cure will be held at Almaden Lake Park in San Jose, California from 10:30 AM to 2:30 PM (registration starts at 9:30 AM). More details will be posted on www.gistwalksanjose.org in the next few months.
Celebrate the Life of Jay LaegreidJoin us for the Day For Jay Benefit which supports The GIST Cancer Research Fund and celebrates the life of Jay Laegreid. Date is July 20, 2018 at 6:30 PM at The Tin Room Bar & Theater in Seattle, WA. The event is open to the public. Please feel free to spread the word and invite friends to attend. Details: Silent Auction begins at 7:00 PM • Entry is by cash donation only • Entry donation will include appetizers and two drink tickets.READ MORE
Thank You GCRFThe OHSU Knight Cancer Institute presented a thank you award to Tania and Robert Stuntman and GCRF by Michael Heinrich, M.D. and Christopher Corless, M.D., Ph.D. at the Conference Highlighting Advancements in Gastrointestinal Stromal Tumors (GIST) Research on May 9, 2017.READ MORE
Long-Term Survival Rates For GIST PatientsThe SWOG study shows strong long-term survival rates for patients with GIST. "This is a really exciting finding," said Dr. Michael Heinrich, a SWOG investigator and a professor of medicine and cell and developmental biology at Oregon Health & Science University, where SWOG is based.READ MORE
Supporting The GIST Cancer Team of Doctors, Researchers & NursesGCRF is committed to supporting the GIST Cancer Team of Doctors, Researchers and Nurses who have dedicated their lives to the treatment and cure of this deadly cancer.READ MORE
GIST - A Rare Orphan Cancer
Gastrointestinal Stromal Tumor or GIST is a rare, orphan cancer which starts in a type of tissue called the stromal or the body’s connective tissue (fat, muscle, blood vessels, deep skin tissues, nerves, bones or cartilage). GIST is a silent cancer often spreading before the patient has symptoms. Each year, approximately 5,000 adults in the United States alone are diagnosed with GIST Cancer. The overall five year survival rate of people diagnosed with a malignant tumor has been estimated to be 76%.
Gastrointestinal Stromal Tumors (GISTs) are so rare that the exact number of people diagnosed with these tumors each year is not known. Until the late 1990s, not much research was available about these tumors and doctors didn’t have enough information or solid markers to identify them through testing. According to the American Cancer Society, many doctors misdiagnose GIST as another type of GI cancer. The lifesaving treatment for GIST was delayed and the GIST Cancer destroyed lives.
Fox Chase Cancer Center Applauds GCRF For Its Generous Support
Margaret von Mehren, MD, Chief, Division of Sarcoma Medical Oncology, Lori Rink, Ph.D., Assistant Professor and Martin Belinsky, Ph.D., Staff Scientist discuss the strides in finding a cure for GIST Cancer which were made possible by the GIST Cancer Research Fund.
Attention GIST Patients: Web-Based Survey of Cognitive Dysfunction & Other Patient-Reported Outcomes Now Available
A study is being conducted by Dr. Anette Duensing in collaboration with Drs. Dana Bovbjerg and Robert Ferguson (Biobehavioral Oncology Program, UPMC Hillman Cancer Center, University of Pittsburgh School of Medicine) and Dr. Beth Snitz (Department of Neurology, University of Pittsburgh School of Medicine). We are asking GIST patients who are members of your online community and support groups to complete an online survey to help us to identify possible memory complaints in GIST patients on long-term TKI therapy. Please note: The survey can only be taken once from any given IP address. Take survey now. Click on button below.
Save Lives And Show Your Feelings About GIST Cancer
GCRF has GIST Cancer Bracelets, Ribbons and T-Shirts available for sale. By wearing and displaying them, you are spreading a message and awareness to find a cure for this rare cancer.
Donate today to spread awareness and find a cure! To Purchase, Click On The Button Below.