GIST - A Rare Orphan Cancer

Gastrointestinal Stromal Tumor or GIST is a rare, orphan cancer which starts in a type of tissue called the stromal or the body’s connective tissue (fat, muscle, blood vessels, deep skin tissues, nerves, bones or cartilage). GIST is a silent cancer often spreading before the patient has symptoms. Each year, approximately 5,000 adults in the United States alone are diagnosed with GIST Cancer. The overall five year survival rate of people diagnosed with a malignant tumor has been estimated to be 76%.

Gastrointestinal Stromal Tumors (GISTs) are so rare that the exact number of people diagnosed with these tumors each year is not known. Until the late 1990s, not much research was available about these tumors and doctors didn’t have enough information or solid markers to identify them through testing. According to the American Cancer Society, many doctors misdiagnose GIST as another type of GI cancer. The lifesaving treatment for GIST was delayed and the GIST Cancer destroyed lives.

“One Life Lost is One Life Too Many”

Tania Stuntman was diagnosed with an extremely rare orphan cancer called gastrointestinal stromal tumor or GIST. It was so rare that questions on treatment, general information and survival rates couldn’t be found. She was told to give up but she refused. In 2001, Tania and her husband, Robert, founded the GIST Cancer Research Fund (GCRF) to provide support, counseling and awareness to the growing community of GIST patients, families and caregivers. The primary goal of GCRF is to raise much needed funds for GIST Cancer education, awareness and research to increase survival rates, expand life-saving therapies and most importantly, save lives.

Tell The World How You Feel About GIST Cancer

Spread Awareness & Join The Fight and Let’s Find A Cure!

By wearing and displaying GIST Cancer bracelets, ribbons and t-shirts, you are spreading a message and awareness to find a cure for this rare cancer. Remember 100% of all donations go directly to GIST Cancer Research.

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Support the Gist Cancer Research Fund every time you shop, at no cost to you, with AmazonSmile. When you shop at smile.amazon.com, the AmazonSmile Foundation will donate 0.5% of the purchase price from your eligible AmazonSmile purchases. Remember that every time you make an Amazon purchase, you’re also supporting the GIST Cancer Research Fund and helping to find a cure for GIST Cancer.