News

Thank You GCRF
for the Continued Support of
Over $1.3 Million Dollars
to the
OHSU Knight Cancer Institute

The OHSU Knight Cancer Institute
Presented a Thank You Award to
Tania and Robert Stuntman and GCRF by
Michael Heinrich, M.D. & Christopher Corless, M.D., Ph.D.
at the Conference
Highlighting Advancements in
Gastrointestinal Stromal Tumors (GIST) Research
on May 9, 2017.
The GIST Cancer Research Fund has Donated
Over $1,300,000

to the Heinrich-Corless Labs in their research
to find a cure for GIST Cancer.

An Invitation to the Memorial Sloan Kettering Cancer Center GCRF Presentation

 
 
 

 
 
 

Wednesday, May 31, 2017 @ 3:00 pm
Rockefeller Research Laboratories, Room 104
430 East 67th Street, New York, NY 10065

RSVP: Audrey Williams , Friday, March 25
Email: william7@mskcc.org

(Shown left to right): Dr. Tim Bowler, Dr. Ciara Kelly, Dr. Sandra D'Angelo,
Dr. Ping Chi, Dr. William Tap and Dr. Cristina Antonescu, Dr. Ronald DeMatteo missing from photo.

Speakers & Topics:

Ciara Kelly, MD & Tim Bowler, MD, Sarcoma Medical Oncology Service
“The Clinical Impact of Routine Next Generation Sequencing in GIST”

Ping Chi, MD, PhD, HOPP & Sarcoma Medical Oncology Service
“ETV1 Targeting in GIST: On-going and Future Clinical Trials”

Sandra P. D’Angelo, MD, Sarcoma Medical Oncology Service
“An Update on Immune Checkpoint Inhibitors Clinical Trials in GIST”

Ronald DeMatteo, MD, Surgery & Cristina R. Antonescu, MD, Pathology
“The Utility of Patient Material in Guiding the Next Therapeutic Strategy”

Long-Term Survival Rates For GIST Patients


The SWOG study shows strong long-term survival rates for patients with GIST. "This is a really exciting finding," said Dr. Michael Heinrich, a SWOG investigator and a professor of medicine and cell and developmental biology at Oregon Health & Science University, where SWOG is based. SWOG is a global cancer research community of over 12,000 members in 47 states and six foreign countries who design and conduct publicly funded clinical trials. Published in JAMA Oncology.

A Message of Thanks: Jonathan A. Fletcher, MD • Brigham and Women’s Hospital

An update and message of thanks for the GIST Cancer Research Fund from Jonathan A. Fletcher, MD, and his team at Brigham and Women’s Hospital: (in order of appearance) Nacef Bahri, Alexandra Lauria, Meijun Zhu, MD, Bin Li, MD, PhD, Stacy Yanofsky, Armelle Dufresne, MD, PhD, Wenbin Ou, PhD, and Anastasios (Tasos) Kyriazoglou, MD, PhD.

Fox Chase Cancer Center & GCRF

This video highlights advances in research and treatment for Gastrointestinal Stromal Tumors made at Fox Chase Cancer Center in Philadelphia. Fox Chase is grateful to the GIST Cancer Research Fund and its founders, Tania and Robert Stutman, for their generous support. In the video, Martin Belinkey, PhD, Staff Scientist, Lori Rink, PhD, Assistant Professor and Margaret von Mehren, MD, Dept. of Hematology/Oncology share some of the advances made over the past year, as well as what they will pursue in the coming year with this financial support.

The research studies by Martin Belinkey and Lori Rink can be found in the links below:

Somatic loss of function mutations in neurofibromin 1 and MYC associated factor X genes identified by exome-wide sequencing in a wild-type GIST case

Combination of Imatinib Mesylate and AKT Inhibitor Provides Synergistic effects in Preclinical Study of Gastrointestinal Stromal Tumor

Memorial Sloan Kettering Cancer Center - GIST Cancer Research Fund

March 30, 2016

GIST Education Conference & Lunch • Portland, Oregon

OSHU_group

The 2016 GCRF Conference and Luncheon at Oregon Health and Science University’s Knight Cancer Institute was held on May 10, 2016. The labs of Dr. Michael Heinrich, Dr. Christopher Corliss and Dr. Brian Druker are relentless in their dedication to advancing treatment options for patients with gastrointestinal stromal tumors (GIST) and other cancers. The teams are actively working on a variety of projects that are yielding promising results:
The search for a master key
Strategies to decrease KIT production
Identifying new types of GIST
Establishing model systems for SDH-deficient GIST to test new strategies

Dr. Michael Heinrich gave a presentation which include a review of the the projects he and his team of researchers are currently working on at OHSU.

We would like to extend our sincere gratitude to everyone who participated in the 2016 Annual GCRF Conference and Luncheon. It was wonderful to see so many of you and we hope you found a sense of community, patient support and helpful information at this event. Additionally, we want to thank the GCRF for their incredibly generous donation. With your amazing fundraising efforts, we are able to continue to work hard to find a cure for this devastating disease.

OSHU_group

Please click on the following link to view the presentations from the Conference:

GIST Cancer Research Fund Walk For A Cure

On behalf of GCRF and its Board of Directors, we wish to thank all of you who attended and supported the GIST Walk For A Cure in New York, California and Washington State. Watch for upcoming information about the 2017 Walks. GIST Cancer patients and researchers throughout the world will be attending. These are the largest fundraising events of the year.

October 2017
GCRF New York Walk For A Cure
Rockland Lake State Park
Congers, New York
Contact: Tania and Robert Stuntman

GCRF Walk for a Cure
Almaden Lake Park 
San Jose, CA
Contact: Liz Chew
San Jose Walk For A Cure

Team Turano: Walking For A Cure & Making A Difference

GCRF is grateful for the Turano Family and their courageous fight again GIST Cancer. We thank them for their generous support and making a difference in the lives of GIST patients everywhere. We ask everyone to keep Angelo, GIST patients and families in your thoughts and prayers.

For the Turano Family, the GIST Cancer Research Walk For a Cure was personal. Angelo Turano was diagnosed with GIST cancer in 2008. Between that time and 2015, he endured three surgeries to remove GIST tumors. In August of this year, Angelo was diagnosed again with a reoccurrence of GIST. After learning of his most recent diagnosis, the Turano family was devastated. But after a few weeks, they made a decision to stay optimistic and concentrate on something positive. They began by doing some research on GIST Cancer and in doing so, found the GIST Cancer Walk For A Cure in New York.

The doctor treating Angelo is Dr. Ron DeMatteo and he often speaks of the GCRF Walk. Angelo, his wife, Karen and their two children immediately made the decision to participate in the 2016 Walk for a Cure. Not only would they walk but also, they made a concerted effort to raise money for the walk in only three weeks time.

Karen took charge and decided to use the most efficient way to quickly communicate to family and friends. She sent out text messages inviting them to participate in the walk as well. Two weeks prior to the walk, Karen and her sisters brainstormed on how to raise money in such a short time. “We thought about having a fundraiser dinner but our concern was the short notice. First, can we pull it off? And second, would people come? My sister, Chrissy, said that we should just invite everyone we know and see who can make it,” Karen said. It was a great idea. They invited family members and close friends for a dinner at the Turano house the following weekend and asked for donations for the GIST Cancer Research Fund in honor of Angelo. They were determined to raise funds for the walk.

Everyone was assigned a task, whether it was shopping, making centerpieces, cooking, setting up the tables and chairs, decorating, donating prizes, cleaning up, etc. All of the Turano family and friends came together and contributed to the success of what turned out to be an amazing event. “Never would I have imagined the turnout we had. We ended up with over 100 people at our home honoring Angelo and when it was over, we raised over $7,500.00,” commented Karen.

Every member of Team Turano who participated in the Walk and even some who couldn’t make it, reached out to all of their extended family, friends, business partners and coworkers to raise additional donations. In total, over $13,000.00 was raised. This was truly an amazing effort by one family to make a difference in the fight to find a cure for GIST Cancer. Of course, the Turano Family has decided to make this an annual event to help raise the much-needed funds for GIST Cancer research.